Wednesday, October 16, 2024

Some bad news, health-wise

 

As regular readers will know, I've been battling a kidney condition, hydronephrosis, and associated kidney stones for just about a year now.  An ultrasound and two CT scans later, plus three surgical procedures, and I thought it was healed.  Unfortunately, that's proved to be a pipe dream.  A few weeks ago I began to get renewed pain in my kidney, and my waterworks began to dry up.  I was fed up by then with the lack of communication from the local urologist who'd done the work, so I asked my primary care physician to refer me to a top-level specialist at a major medical center, who could analyze what's going on and (hopefully) come up with a solution.

Yesterday my wife and I drove down to the DFW metroplex, and spent three hours at a facility there.  The new (to me) urologist ordered a further CT scan, which they were able to do within an hour (let's hear it for big city medicine and its abundant facilities!).  The upshot is, there are still blockages.  Some of them may, in fact, be scar tissue from earlier procedures that were "less than optimally performed".  Needless to say, I was not delighted to hear that!

I'm expecting to hear today or tomorrow from the scheduler in DFW.  It looks like I'll be having yet another procedure, this time an exploratory one to establish the extent of the problem.  That may include removal of stone fragments from earlier procedures, but it's mostly to get a good look from the inside at what the latest scan is showing.  Depending on what they find, I may be admitted right away for a more invasive procedure, involving going into the kidney through the back and digging out whatever bits and pieces are a problem.  If the damage to the kidney is already too great, then we may be looking at taking it out altogether.  That's not a desirable solution, of course, but there's no point in leaving it in place if it's just going to go on giving me trouble.  It's been dragging on for a year now, so it has to be resolved, one way or another.

Adding to my frustration is, as I've mentioned earlier, the further deterioration in my spine following my disabling injury two decades ago.  A detailed scan has revealed the need for at least two spinal fusions above the site of my existing fusion.  My medical insurance doesn't want to pay for them because the initial injury was paid for by workers compensation;  but workers compensation doesn't want to pay for the new surgeries because (it insists) it's impossible to prove that the deterioration is the result of the previous injury.  (All my doctors insist it is, but getting that past the lawyers and bureaucrats is a tale in itself . . .)

Therefore, I've been planning a fundraiser to ask for your help in paying for that surgery.  It's going to be very expensive, as well as painful, and I'd been putting it off until my kidney problems had been resolved.  Unfortunately, I can't afford to delay any longer, or I may end up in a wheelchair for the rest of my life.  Look for a fundraiser here within the next week or two.  I'll hopefully get some or all of the cost back from either workers comp and/or medical insurance at some stage, but that may take a year or two to get through the legalese and bureaucratic shenanigans.  I have to get this done out of my own pocket if it's to be done in the short to medium term.

All in all, I'm frustrated and annoyed right now.  This is a terribly depressing and miserable situation to be in.  I'm trying to look on the bright side and find light amid the clouds, but it ain't easy sometimes.  To those of you so inclined, please say a prayer or two for me now and then;  and I'll ask all of you to please spread the word about the fundraiser when it kicks off.  I have no idea whether or not I'll be able to raise enough for the surgery through donations, so my wife and I will be talking to our bank about a second mortgage on our home if necessary.  One way or another, with God's help, we'll make this happen.

To those of you who've been wondering when I'm going to publish more books - that's why you haven't seen any for well over a year.  My levels of pain and medical frustration have been so high as to interfere with the creative writing process (which is a very euphemistic way of putting it).  I have two books almost ready to go, but finding the pain-free time and energy to finish editing and put them through the publishing process is almost impossible right now.  I have every intention of carrying on writing and publishing, even if it does have to happen from a wheelchair;  so keep your fingers crossed, and tie knots in what you can't cross.  Every little helps!

Thanks for listening to me moan about life, the universe and everything.  Oddly enough, it does help to vent about it now and then.  Your support means a great deal to me, and to my wife.

Peter


24 comments:

NobobyExpects said...

Prayers sent.

Redacted said...

BRM,
as a former health care worker that received an L3-4 compression injury on the job, that worker’s comp in Houston refused to acknowledge,
you certainly have my empathy.

I will keep an eye out for the fundraiser, and will assist if possible.

If Virtual Lambert doesn’t mention this, I will refer him here.
Perhaps others there will be willing to help also.

As always in such matters-
I will add you to my daily Prayer List.

Sven said...

I'll send some Hail Marys your way and a few bucks when you get the fundraiser going.

Anonymous said...

My condolences Mr. Grant on hearing the prognosis of your health. I hope the procedure will be able to reduce or eliminate the effects of what you are feeling now.

Do you have a postal address which letters can be sent to ? Some of us (myself included) have no on-line payment methods and would like an address to send a donation to. If you would rather forego that to maintain privacy, I understand.

I hope you receive good news soon ! Be well sir.

BobF said...

"Fundraiser" sounds like raffle or sell something. I'd be happy to see a link to a GiveSendGo or GoFundMe account.

Mike Hendrix said...

I'll be happy to help spread the word to the best of my ability, Peter. Best of luck with the procedure, and may God bless you.

Duke of URL VFM#391 said...

May the Most High grant His healing to you. I will certainly be watching for your fundraiser.

boron said...

I wish you the best and will ask Him to watch over you.

TheAxe said...

Best of luck Peter!

Toirdhealbheach Beucail said...

Prayers Up, BRM.

Anonymous said...

Sorry to hear that your kidney and back problems are back and ongoing.
I will watch for your fundraiser / medical assistance appeal, and do what I can then.
If you need any help with the books that I might be able to provide, such as beta reading or possible editorial review, please let me know.
Free, and worth every penny of it. :-)
John in Indy / Sage

Anonymous said...

It might be worth your while to look up "A midwestern doctor" and the recent articles on DMSO, they indicate some success with pain from spinal surgeries

glasslass said...

Hubby had kidney problems for years. Trying to stick to a diet very low in oxalate, which plays such part in kidney function, was a problem simply because that was his diet for years prior to meeting me. Lots of Doctors missed that when treating him. But all my wishes and hope for you and lots of prayers. As Anonymous said PO box? Same reasons for me.

Anonymous said...

Seconded. A Midwestern Doctor has been posting insightful Substack articles on medicine since the pandemic. While I can't vouch for DMSO specifically, his articles are detailed, clearly written, and well-cited. Definitely worth a look.

Here's the first of three articles on DMSO: https://www.midwesterndoctor.com/p/dmso-could-save-millions-from-brain

Anonymous said...

Grant, if your insurance refuses to pay for the spinal procedure you might be better off getting it done in Mexico...from what I hear via the grapevine they charge way less.

Anonymous said...

Prayers and a lot of hugs.

SLee

Peter said...

I agree it's much cheaper in Mexico, but there are also far too many horror stories for my liking about sub-standard and flawed surgery that produces permanent damage, even death. Admittedly, those cases were mostly for cosmetic surgery, not surgery-surgery, if you follow me. I'll look into it further.

Peter said...

Interesting stuff. I hadn't been aware of that. I'll read more about it, and might try some.

Anonymous said...

Grant, might be worth looking into whether or not if you can get a hold of Fred Reed, he has been living in Mexico for a long time. Chances are he can give you an idea of what to look for and what to watch out for. Unfortunately Fred has bid farewell to blogging, I have no clue how to get a hold of him. His current website: https://fredoneverything.org/

Jonathan said...

I guess the Kidney C.O.P. is no longer working for you?

Do you know what kind of stones you have? Calcium phosphate, calcium oxalate, magnesium ammonium phosphate, uric acid stones, cystine stones, something else?

Are you supplementing K2, magnesium, and potassium daily? These three could make a difference for calcium stones.

Anonymous said...

In our earnest prayers, sir. God bless and keep you, may your healing be swift and seemingly (or, for His Glory, *literally*) miraculous!

Anonymous said...

Will certainly pray for you. One piece of advice: don't let the chair of the department ever work on you. They're administrative, and research, centered, NOT clinical. Also, if your doctor has more than 50 papers published, it's at least a warning sign (research, again). Case numbers and recent work are highly determinative of expected quality. Just so you know.

TGreen said...

You and Miss Dot continue in my prayers.

JohninMd.(HALP!) said...

Ys. 😁ome books when somou bitch and moan very little, considering the plate full of crap you and the Missus are dealing with, Peter. Will send some kibble when the next check comes in, what little I can. But prayers ARE incoming, weapons free.... Godspeed to you, and will be buying some books when possible...I'm a sucker for a good Western.... 😁